Charles Gore was diagnosed with hepatitis C in 1995 and cirrhosis in 1998. In 2000 he set up The Hepatitis C Trust together with 3 friends who also had hepatitis C. In 2002 he did pegylated interferon and ribavirin treatment and successfully eradicated the virus.
He has continued to run the Trust, working extensively with Government Departments and the National Health Service (NHS) in the UK, championing the patient perspective. He was closely involved in the creation of the European Liver Patients Association and was elected its first President in 2004. In 2007 he organised a meeting of hepatitis patient organisations from around the world to agree on co-ordinated global action. From this emerged the decision to hold an annual World Hepatitis Day and to create a new NGO, the World Hepatitis Alliance, of which Charles is the President. As a result of advocacy by the Alliance and its members WHO adopted successive viral hepatitis resolutions in 2010 and 2014, making World Hepatitis Day an official day and mandating the creation of a global strategy to tackle viral hepatitis.
Charles sits on a number of national and international advisory bodies including various WHO hepatitis guidelines development groups and the WHO Director-General’s Strategic and Technical Advisory Committee for Viral Hepatitis.